RAD Caregiver

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Rheumatoid Autoimmune Disease, doctors and stress

It is no secret that, in general, I do not like doctors and do my best to avoid seeing them on a professional level. Since Tanya moved here I have been with her on several visits to see her rheumatologist; the experience has not done much to change my opinion of the profession. I will admit, after the first visit I thought that perhaps I had been too harsh; there are specialists out there that will really listen to their patients. I thought it was quite refreshing and I looked forward to the experience.

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When we went in for the second visit I was dismayed when the doctor thumbed through the research Tanya had provided two weeks earlier as though it was his first time. Still, he was conducting new tests and was suggesting new medications so I had to reserve judgment; besides, the first appointment was after lunch and the second one was in the morning. We decided that we would only schedule afternoon appointments as he seemed less busy and more able to spend time with Tanya. Continue reading

Why isn’t your rheumatologist suggesting stem cells?

A few weeks ago I mentioned that Tanya’s rheumatologist, Dr. Forouzesh, had told me about an upcoming Frontiers of Rheumatology symposium that was coming up [at the end of April] in Marina del Rey at the Marriott Hotel. I decided that I would attempt to get a media pass so I could learn a little more about what is being talked about in the profession with regards to Rheumatoid Autoimmune Disease. I will admit, it took a little doing; and while Dr. Furst, one of the co-chairs of the event, gave the okay to my attendance, if I had not followed up no one was going to tell me. When I called to follow up I was informed that I could come, however, I could not bring my camera, I had to sit in the back of the room and I could ask no questions. I was not going to let a little thing like having my hands tied hang me up, so I made plans to go out to Marina del Rey over the weekend.

the Marriott, Marina del Rey, CA

Frontiers of Rheumatology Symposium at the Marriott Marina del Rey

Unfortunately, I was unable to make it to the early morning sessions on Friday due to a major plumbing issue at home. When I attempted to enter for what I thought was perhaps a Q&A and discussion on RA treatments after their lunch break, I was told I could not attend afternoon sessions. One session I really wanted to attend was called Measuring RA Outcomes: Big Brother is Watching. I hoped that perhaps stem cell therapy might have been mentioned. I have a feeling it was not. Continue reading

Back to Dr Forouzesh for test results

Tanya and I went back to see her Rheumatologist, Dr. Forouzesh yesterday; with the primary intent of getting the results of the Vectra DA blood test and the bone density test that were conducted two weeks ago. She also had an ultrasound done to check her thyroid because of nodules that are growing on it. Her neck has been swollen and swelling for a couple years now. The results of these tests were going to help Tanya decide if she wants to get stem cell therapy or not. Needless to say, it was a visit we have been looking forward to.

As I sat and listened to Dr. Forouzesh and Tanya go over the test results, I have to admit a certain amount of relief. To my untrained ear, it sounded like Tanya could be a lot worse off than she is today, at least according to the test results. Of course, there is one part of the test that might suggest that she does not have Rheumatoid Autoimmune Disease/Rheumatoid Arthritis, but that is why they take seven vials of blood instead of one. The bone density test results were very good, so I guess at this point in time Osteoporosis is not a concern. Dr. Forouzesh did say Tanya needed more Vitamin D and Omega 3. There was an indicator of possible heart issues, but they ran a test in the office and I guess it is not something to worry about . . . yet.

Blood Pressure Test

Blood Pressure Check

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