RAD Caregiver

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A visit with Tanya’s new Rheumatologist

Yesterday, Tanya went to see a new Rheumatolgist, Dr. Solomon Forouzesh in Culver City. Since her move to Southern California, this has been her first visit to a doctor about her Rheumatoid Autoimmune Disease. As I have mentioned in prior posts, we are seriously considering going to Panama to take advantage of the adult stem cell therapy that is available there. Since she has not been to a doctor since the middle of last year, it was decided that it only made sense to get a checkup so we could see where she was at. After doing significant research, Tanya decided on Dr. Forouzesh which I have to say seems like a great choice.

Anyone that knows me or has followed my blog for any significant amount of time probably is aware of my attitude towards doctors and the medical profession in general. I am pleased to say that I walked away from his office quite pleased with the events of the afternoon. After [actually] listening to Tanya, Dr. Forouzesh ordered up a Vectra DA blood test that will give an accurate idea of what is happening with her now, along with a bone density test both of which were done there in the office. He also wants an ultrasound done on her thyroid, but that has to be done earlier in the day, so she will have it done when we return in two weeks. Continue reading

Hope can change your day

It is mind blowing how quickly attitudes can change, especially when hope is added to the mix. It was only yesterday that I had finally fought through the writer’s block that had been preventing me from writing my last post about RAD and stem cells. By the time I finally got into the groove of writing, I may have mentioned stem cells to Tanya, but the fact of the matter is that she did not really understand them or how they worked, so if I mentioned them in passing, the brain fog that RAD causes had caused my comments to go unnoticed. It happens.

The thing is, about the time I started writing, Tanya received a letter from her rheumatologist in Indiana. She had not seen him since the middle of 2011 and had postponed scheduled appointments because of her move to CA. The letter contained some very discouraging news. While prior test results were always described as boring, these ones were not. There were signs of a lot of damage and from what was read to me, it sounded like the potential for more was absolute. Tanya was pretty depressed as was I. It is tough hearing what to expect in the forthcoming years to the woman you love. Scary too.

photo of Tanya in Ireland

Tanya having better times in Ireland

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Stem Cells and Rheumatoid Autoimmune Disease

It has been a month since I left off on my discussion on why Rheumatoid Arthritis should be renamed as Rheumatoid Autoimmune Disease and I apologize for that. Luckily, Tanya said I could take advantage of her RA Twist, so this is probably going to take a couple years to finish. Who knows, the world is supposed to end in December, so maybe it will never be completed.

Living with RAD logo

Stem Cell Research for a cure to RAD?

Anyway, when I left off I was tying RAD together with South Park. As I mentioned earlier in the article about why RA should be called RAD, Tanya and I had just watched the movie ‘Burzynski’ which is about Dr. Stanislaw Burzynski, a medical doctor that has seemed to have come up with a very effective method of combating even the most deadly of cancers. While one would hope that the medical community would be elated, the FDA started prosecuting the man because he was the sole patent holder on his discovery and big pharmaceutical companies would be losing a major cash cow. For me personally, the thing that upset me the most was not the bureaucratic bullshit, I expect that, but the fact that chemotherapy was the preferred method and that was a technology developed in the 1940’s! It made me wonder the likelihood of big pharmaceutical allowing a cure for RAD or any other killer disease. Then South Park came on. Continue reading

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