RAD Lovegiver

Page 1 of 3123

Living with RA: One year later

A few weeks ago several of my siblings came into town to attend a function that was honoring my dad and a few others that attend his church. One of my brothers asked me if I was going to continue writing about life with Rheumatoid Arthritis or not. Apparently he had enjoyed reading my perspective. I explained to him that while I was continuing to do as I had promised as far as bringing awareness of RA and of the Rheumatoid Patient Foundation, I was doing it primarily by donating watermarks on some of my photos to the Rheumatoid Patient Foundation. The reason for this was that living with a person that had RA was not always a pleasant experience and I was not always ready to deal with the strife that might result if I wrote my thoughts for the world to see. Little did I know that some might interpret my lack of writing a an indication that all was well, apparently there are people in my own family that seem to think that we use Tanya’s disease as an excuse to get out of doing things. Tanya frequently discusses on her blog how strangers do not seem to understand RA, how they will offer home remedies that their grandmother used for her arthritis, or how if people cannot see the effects of the disease, it must not exist. I begrudgingly accepted this as reality, but I was saddened when I discovered that this extended to my own family. As a result, I have decided to talk a little about the last year.

In October of 2011 Tanya moved in with me and I learned what living with Rheumatoid Autoimmune Disease (RAD), also known as Rheumatoid Arthritis (RA) was really like. Tanya and I carried on a long distance relationship for more than four years, so I thought I had a pretty good grasp on things as far as RA was concerned; I was wrong. When we were 2,000 miles apart I did not see RAD on a daily basis; I could only go by the comments Tanya might make when we spoke on Skype or ICQ. Considering we lived so far apart we saw each other a lot but Tanya is pretty good about not complaining, so for the most part, I only heard about problems when they were severe. Because Tanya wanted to spend time with me, she would suffer in silence and I really did not know how bad it was. Continue reading

A visit to Dr. Mariko Ishimori

Thursday morning, Tanya and I headed out to Beverly Hills and Cedars-Sinai Medical Center to visit a new rheumatologist, Dr. Mariko Ishimori, MD. After Tanya’s last experience with Dr. Forouzesh she decided that she could not handle the stress of having a doctor that changed attitudes and commentary with each visit. The fact that he had been giving her Cimzia as samples that were already allocated to other patients was the straw that broke the camel’s back. I was not really sure what to expect as we entered the Steven Spielberg Building and our introduction to Dr. Ishimori.

As it was our first visit, I will not go into much depth other that to say that there were additional blood tests ran and an appointment with an endocrinologist was set to check out the issues she is having with glands in her neck. I will make a few observations though. For one thing, Dr. Ishimori’s office ran with clock-like precision. When they say an appointment will start at 10:20 and will lat an hour, it actually starts at 10:20 and lasts an hour. Confidential patient files were not lying all over the counter at Dr. Ishimori’s office. Everyone acted quite professional. I remember thinking that is was almost like Spielberg was directing everything so that there was this precision.

Dr. Ishimori not only took the time to take a very extensive history of Tanya’s past, but she did something I never saw Dr. Forouzesh do; she actually took the time to feel and look at all of Tanya’s joints. Hands, elbows, toes, knees, neck and whatever else that moved. Contrary to Dr. Forouzesh’s assessment that the Cimzia was not going to work, Dr. Ishimori determined that the Cimzia seemed to be doing exactly what it should be doing. That is why a visit with an endocrinologist was set up; perhaps there is more going on than just the RAD (Rheumatoid Autoimmune Disease). Continue reading

Rheumatoid Autoimmune Disease, doctors and stress

It is no secret that, in general, I do not like doctors and do my best to avoid seeing them on a professional level. Since Tanya moved here I have been with her on several visits to see her rheumatologist; the experience has not done much to change my opinion of the profession. I will admit, after the first visit I thought that perhaps I had been too harsh; there are specialists out there that will really listen to their patients. I thought it was quite refreshing and I looked forward to the experience.

RAD Lovegiver

Support Rheum4US.com


When we went in for the second visit I was dismayed when the doctor thumbed through the research Tanya had provided two weeks earlier as though it was his first time. Still, he was conducting new tests and was suggesting new medications so I had to reserve judgment; besides, the first appointment was after lunch and the second one was in the morning. We decided that we would only schedule afternoon appointments as he seemed less busy and more able to spend time with Tanya. Continue reading

Page 1 of 3123

Purchase Your Photo!

If you are interested in purchasing the high quality version of the photo you see on this website without the logo on it, contact lbrown@gotwebhost.com. Send the URL (link) of the photos you are interested in and we send you a quote. Please let us know if the photo will be for personal or commercial use as well. Thank you and we look forward to your business.

Archives