Rheumatoid Patient Foundation

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Living with RA: One year later

A few weeks ago several of my siblings came into town to attend a function that was honoring my dad and a few others that attend his church. One of my brothers asked me if I was going to continue writing about life with Rheumatoid Arthritis or not. Apparently he had enjoyed reading my perspective. I explained to him that while I was continuing to do as I had promised as far as bringing awareness of RA and of the Rheumatoid Patient Foundation, I was doing it primarily by donating watermarks on some of my photos to the Rheumatoid Patient Foundation. The reason for this was that living with a person that had RA was not always a pleasant experience and I was not always ready to deal with the strife that might result if I wrote my thoughts for the world to see. Little did I know that some might interpret my lack of writing a an indication that all was well, apparently there are people in my own family that seem to think that we use Tanya’s disease as an excuse to get out of doing things. Tanya frequently discusses on her blog how strangers do not seem to understand RA, how they will offer home remedies that their grandmother used for her arthritis, or how if people cannot see the effects of the disease, it must not exist. I begrudgingly accepted this as reality, but I was saddened when I discovered that this extended to my own family. As a result, I have decided to talk a little about the last year.

In October of 2011 Tanya moved in with me and I learned what living with Rheumatoid Autoimmune Disease (RAD), also known as Rheumatoid Arthritis (RA) was really like. Tanya and I carried on a long distance relationship for more than four years, so I thought I had a pretty good grasp on things as far as RA was concerned; I was wrong. When we were 2,000 miles apart I did not see RAD on a daily basis; I could only go by the comments Tanya might make when we spoke on Skype or ICQ. Considering we lived so far apart we saw each other a lot but Tanya is pretty good about not complaining, so for the most part, I only heard about problems when they were severe. Because Tanya wanted to spend time with me, she would suffer in silence and I really did not know how bad it was. Continue reading

50 shades of South Bay gray; a day at the beach

Every once in a while I need to just take a day off, away from the house for a while, and yesterday was that day. I had been seeing Facebook status updates mentioning big surf was coming and I figured that with the rain clouds that it would make for some nice photographs. Since Tanya has been feeling a lot better for the last few weeks, she has been able to use her Canon Rebel again; so she was excited to join me. Without bothering to look at the surf report, we headed over to the beach.

We started off at the breakwater at King Harbor in Redondo Beach. While the waves crashing over the breakwater I was hoping to capture did not exist, there were quite a few surfers out there enjoying the swells. We then ventured over to the Hermosa Beach Pier to see if there might be some more dramatic scenery or surfers by the pier. There wasn’t. After several minutes it started to rain a little, so we used the opportunity to move along to the Manhattan Beach Pier. I knew that even if there was nothing else happening, we could go to the Roundhouse Aquarium.

We happened to park right around the corner from Brewco and since we had a nice time the first time we were there we stopped in out of the rain for a bit. After meeting the GM and setting a date for a Business & Beer gathering we headed down to the pier and a visit to the Roundhouse Aquarium. It is small but pretty cool. If you are in the neighborhood stop in and bring the kids. Continue reading

South Coast Botanic Garden, Palos Verdes

These photos were taken last week at the South Coast Botanic Gardens. Every once in a while we need to get out of the house with nothing that has to be done, and Tanya really enjoys taking photos of flowers; so we will head off to somewhere like the South Coast Botanic Garden. The place is huge and after two visits there, we have just scratched the surface. Of course, with Tanya’s limitations due to her Rheumatoid Autoimmune Disease, we don’t usually get more than an hour or two there. It was a nice day; she got some sunshine and photos of flowers so our mission was accomplished.

For those of you with children, the South Coast Botanic Garden is having a Great Pumpkin Hunt every day through October. You can submit a new entry every day so if you want somewhere to take the kids that does not involve candy or video arcades, the South Coast Botanic Garden may be just what you are looking for.

I have donated my watermark to the Rheumatoid Patient Foundation to help bring awareness to this organization Continue reading

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